prader Willi Program Launch

Diversifying our program offerings to meet the needs of the people we support.

De Lone House is the first Prader Willi Syndrome program in Marin County. This unique program offers a glowing alternative to people with this disability. Historically, individuals with Prader Willi Syndrome have had limited options for support and care, housing issues, day programs due to the need for food security, and a high level of behavioral components including anxiety and OCD. This program allows the individuals supported a true chance at independence and community integration.

Austin and Lesley de Lone of Prader Willi Homes of California (PWHC) asked Lifehouse to collaborate on developing and launching the program in Marin. The vision is for individuals with Prader Willi Syndrome to have an enriched high standard of care. The program offers less restrictions than licensed facilities, and still maintains robust precision of care. People in the program maintain a healthy, balanced life with all of the benefits of a typical supported living program.

Lifehouse worked with BJ Goff, a consulting expert, for 2 years to develop and implement the program. The key components of this new program are 1:1 support staff with extensive ongoing training, consulting behavior support, and food security led by a licensed dietitian. With an emphasis on staying active, the individuals in this program have weekly activities that enrich their lives. They go to the YMCA, train for the Special Olympics, horseback ride, visit the San Francisco Zoo, and volunteer at Guide Dogs for the Blind. The program is overseen by David Washington, Program Manager and Claudia Silva, Director of Operations.

The Prader Willi Program facilitates acceptance, nurtures independence and respect, helping individuals with disabilities find their place in the larger community.